Washington father John Barclay is fighting for young cannabis patients to receive their medication at school. He was inspired by his own daughter, River, who suffers from a rare disorder that he says is more effectively managed with CBD than any other medication they’ve tried. If Barclay is successful, Washington would join states like New Jersey and Colorado, both of which have adopted similar policies within the last two years.

River Barclay had her first seizure when she was just four years old on St. Patrick’s Day, 2014. Nearly three years and an unfathomable number of seizures later, River was finally diagnosed in November of 2017 with CLN2, one of several rare inherited disorders known by the umbrella term Batten disease. This degenerative condition first manifests in the form of seizures, as well as difficulty with coordination, language, and motor skills.

CLN2 is terminal; most affected children will not make it into their teens. At 8 years old, River is already in the final years of her short life. Heartbreakingly, Barclay describes how CLN2 takes away pieces of a child, bit by bit, over time.

Ducky's Bill: A Bid to Save Children's Lives and Educations

Courtesy of John Barclay

“With CLN2, there’s no playbook,” Barclay said. “They say there’s an array of things that CLN2 children lose. If you think of the mind like a rainbow, there’s a whole spectrum of things. You could say the blue spectrum has 100 bars and the yellow has 100 bars and so on and so forth. Different shades that control different things. So, the blue might disappear and her sight might go. The green might go, so now she’s not swallowing anymore. More of the green might go, so she’s not protecting her airways and she’s having problems with her saliva. But you don’t know which is going to go.”

For the first few years of her life and before that first seizure, River developed normally, as is the case with CLN2 patients. Barclay recalls his daughter as “smart as heck,” a quick learner, and the owner of a “fun” and outgoing personality that drew others to her. She loved to play pranks on her dad, was a good listener, and made friends easily.

Yet by the end of kindergarten, she was struggling to remember how to complete common tasks. By first grade, Barclay said she had to be removed from class because she was suffering over 100 myoclonic seizures—short jerks in the body—each day.

Barclay said prescription medications often made the seizures or her general quality of life worse, but he did find some relief with CBD. River first started with a tincture: 10 drops, or 2 milligrams, a day.

“That first day, it was like a new canvas. You could instantly see it work,” he said, noting she went from near constant seizures to perhaps six a day. “For three months, we were just using [the CBD tincture], and then [the seizures] started to come back. So we gave her a little more.”

Ducky's Bill: A Bid to Save Children's Lives and Educations

Courtesy of John Barclay

River now takes 260 milligrams a day, in conjunction with Diazepam and anti-epileptic drug Keppra. Barclay says skipping the CBD is not an option.

“She would go sideways. She would have tonic-clonic seizures all day. It would take a radical pharmaceutical rescue to get her to stop,” he said.

Barclay isn’t alone. Fahad Afeef’s 10-year-old son, Ibrahim, also has Batten disease. He told the Houston Chronicle that his son’s first seizure came at age five, and that the cocktail of medications he was initially put on turned him into a “zombie.” Afeef ultimately moved his family from Texas to Colorado in 2013 so he could try CBD. Afeef said his son’s seizures are now sometimes months apart.

For River, however, another barrier emerged as she entered the second grade: though River has a medical cannabis card, her school would not allow cannabis—whichremains federally illegal—on campus. Barclay would take River to school in the morning, then pick her up at lunch and give her CBD oil in the form of drops on a cookie. Barclay told KOMO News that it was too disruptive to try to bring her back to school again, so he’d keep her home the rest of the day.

“We want to do all we can to help, but we also need to work within the confines of the law in our state,” Aberdeen School District Superintendent Tom Opstad said in January of 2017.

Ducky's Bill: A Bid to Save Children's Lives and Educations

Courtesy of John Barclay

Barclay wanted to change those laws, so he reached out to a long-time friend, Washington state Representative Brian Blake (D-Aberdeen). Blake became a co-sponsor of House Bill 1060, otherwise known as “Ducky’s Bill.” This particular bill would have allowed Washington parents or authorized caregivers to administer medical cannabis to their children on school grounds.

“Ducky,” Barclay explained, was River’s nickname, inspired by a dream her mother had while pregnant with River. River is not a fan of the cutesy nickname, and Barclay used that to his advantage.

“When she was having her first seizures, they were really making her mad; she didn’t understand what was going on and everything was confusing,” he said. “During the postictal state [an altered state of consciousness following an epileptic seizure] she would just lay there. I would say, ‘Are you okay, are you there?’ and I kind of got the feeling one time like she was ignoring me. So I looked at her and I said, ‘Ducky, are you there?’ And she looked up at me with the angriest eyes and said, ‘I’m not a duck, Dad, I’m a big girl’ and she got off the couch.”

Thus, “Ducky” became a way for Barclay to tell if his daughter was “back,” as he calls it.

Ducky’s Bill did not make it through the Senate, but Blake intends to reintroduce it again in January. Blake told High Times the bill will be assigned a new number, and he’ll also try to encourage a companion bill in the Senate.

“I don’t care whose bill it is,” he said. “I think it’s a reasonable policy and we just need to get it done.”

Blake says there are about 60 to 100 children in Washington on the medical marijuana registry who could potentially benefit from the bill.

“I’m confident that this therapy works for some children and should be available and shouldn’t be a barrier for them in getting access to professional educators,” Blake said. “[Keeping] them engaged in a normal life and in school with their friends and classmates as much as possible just makes sense to me. Folks, in many ways, want to make it about marijuana, but for me, it’s about children.”

Barclay says Ducky’s Bill is based on a similar bill from New Jersey, championed by attorney Roger Barbour and his wife, Lora. The couple’s teen daughter, Genny, has both epilepsy and autism. She takes cannabis oil four times daily, but was not allowed to have it on campus. Roger Barbour sued his daughter’s school, ultimately winning a settlement of $45,000. In 2016, it became New Jersey law that school boards must allow parents or caregivers to have edible cannabis on campus and on school buses, thus making New Jersey the first U.S. state to allow cannabis on school property. Barbour was still working on further expanding that law when he suddenly passed in September of 2016 due to a heart attack at 51.

In Colorado, there’s Jack’s Law, which, as of 2016, similarly requires schools to allow parents to administer medical cannabis to their children on campus. Jack’s namesake, Jack Splitt, was a 15-year-old boy who suffered from cerebral palsy and epilepsy. Splitt died in August of 2016.

Just this month, Illinois Gov. Bruce Rauner signed off on Ashley’s Law, a bill inspired by 12-year-old Ashley Surin, who takes cannabis for seizures related to leukemia.

Ducky's Bill: A Bid to Save Children's Lives and Educations

Courtesy of John Barclay

Even if Washington adopts Ducky’s Bill, it won’t impact River, whose condition has deteriorated to the point where schooling would be impossible. She no longer takes CBD oil as drops on a cookie, but through a G-tube and, according to her father, is now 95 percent blind. To keep up with the rising costs of her increased CBD dosages, Barclay has begun growing his own plants. He also has an active GoFundMe to help pay for River’s extensive care. Still, Barclay remains committed to Ducky’s Bill for his daughter’s legacy and the sake of children like her.

“My greatest hope right now is to get cannabis and CBD out there, more mainstream, along with [awareness for] CLN2 and Batten,” he said. “I don’t want to see other children suffer.”

The post Ducky’s Bill: A Bid to Save Children’s Lives and Educations appeared first on High Times.

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1. What is CBD? What is CBD Oil?

Cannabidiol (CBD) is a naturally occurring constituent of industrial hemp/cannabis. Its formula is C21H30O2 and it has a molecular mass of 314.4636. It is the most abundant non-psychoactive cannabinoid found in cannabis, and is being scientifically investigated for various reasons.

CBD oil is a cannabis oil (whether derived from marijuana or industrial hemp, as the word cannabis is the latin genus name for both) that has significant amounts of cannabidiol (CBD) contained within it. Our CBD products and extracts are derived from industrial hemp, so they could be considered CBD-rich hemp oil, hemp derived CBD oil, CBD-rich cannabis oil, or plainly “hemp extracts” since they typically contain much more than just CBD. Again, cannabis doesn’t mean marijuana, but is the genus name, and general umbrella term which all forms of marijuana and hemp fall under. The form of cannabis we use for our CBD and hemp extracts is industrial hemp; we do not sell marijuana.

2. If a hemp extract is 40% cannabinoids, what’s the other 60%? What’s in your hemp extracts besides the naturally occurring cannabinoids?

Our Kentucky hemp extracts contain over 80 different phyto-cannabinoids such as cannabidiol (CBD), CBC, CBG, CBN, etc.. In addition to the cannabinoids naturally present in our agricultural hemp extracts, there are also many other types of natural molecules and phyto-chemical compounds such as amino acids, carbohydrates, vitamins (including B1, B2, B6, D), fatty acids (including omega 3 & 6), trace minerals (including iron, zinc, calcium, magnesium, potassium), beta-carotene, chlorophyll, flavanoids, ketones, nitrogenous compounds, alkanes, glycosides, pigments, water, and terpenes. The most common terpenes in our hemp extracts are Myrcene, Beta-caryophyllene, Terpinolene, Linalool, alpha-Pinene, beta-Pinene, Nerolidol og Phytol, trans-alpha-Bergamotene, Limonene/ beta-Phellandrene (Co-elution), and alpha-Humulene.

3. What’s the difference between Hemp and Marijuana?

Scientifically, industrial Hemp and Marijuana are the same plant, with a genus and species name of Cannabis Sativa. They have a drastically different genetic profile though. Industrial Hemp is always a strain of Cannabis sativa, while marijuana can be Cannabis sativa, Cannabis indica, or Cannabis ruderalis. The major difference is how industrial hemp has been bred compared to a marijuana form of Cannabis sativa. organic hemp seedsTypically speaking, industrial hemp is very fibrous, with long strong stalks, and barely has any flowering buds, while a marijuana strain of Cannabis sativa will be smaller, bushier, and full of flowering buds. However, newer industrial hemp varieties in the USA are being bred to have more flowers and higher yields of cannabinoids and terpenes, such as our Kentucky hemp we’re now using!

99% of the time marijuana has a high amount of THC and only a very low amount of CBD. Hemp, on the other hand, naturally has a very high amount of CBD in most instances, and only a trace amount of THC. Fortunately, the cannabinoid profile of hemp is ideal for people looking for benefits from cannabis without the ‘high.’ Hemp is used for making herbal supplements, food, fiber, rope, paper, bricks, oil, natural plastic, and so much more, whereas marijuana is usually used just recreationally, spiritually, and medicinally. The term cannabis oil can refer to either a marijuana or hemp derived oil, since marijuana and hemp are two different forms of cannabis.

In the USA the legal definition of “industrial hemp,” per Section 7606 of the Agricultural Appropriations Act of 2014, is “INDUSTRIAL HEMP — The term ‘‘industrial hemp’’ means the plant Cannabis sativa L. and any part of such plant, whether growing or not, with a delta-9 tetrahydrocannabinol concentration of not more than 0.3 percent on a dry weight basis.”

4. Are hemp derived cannabinoids such as CBD as good as CBD from marijuana?

The short answer is yes. CBD is CBD, whether from marijuana or hemp. Most marijuana has a very low non-psychoactive cannabinoid profile (like CBD, CBC, CBG), so most of the time hemp would be much more preferable for anything besides THC. Marijuana is usually very high in THC (gives people the high) but usually very low in other non-psychoactive cannabinoids.

Nowadays in the USA, many farmers are growing industrial hemp flowers that are just as beautiful, odor-producing, and terpene rich as the best marijuana strains, such as our partnered farmers in Kentucky.

5. Why don’t you source your Hemp and CBD from within Colorado?

colorado growing operationWe feel that the hemp program in Kentucky is more well suited for our company in regards to growing hemp, and that because it’s 100% compliant with Section 7606 of the 2014 Farm Bill (and the 2016 Agricultural Appropriations Act), procuring it from there is perfectly legal at the federal level. Kentucky’s ecology is perfect for hemp just as it is for tobacco. The growing season is longer than in Colorado, and the soil is richer, so the quality of the hemp and the yields are better.

6. What’s the percentage of cannabinoids and CBD in your product?

Our raw extracts have varying percentages of cannabinoid and cannabidiol (CBD) content, the range being 10%-99%. Each product has a unique formulation and uses varying ratios of our extract types. Our CBD Isolate is over 99% pure CBD.

7. What is the best method of use?

For our dietary supplements we can only recommend them for internal consumption. Our CBD isolate is for research purposes only. If you don’t like the flavor of the oil supplements, you can mix with something sweet like apple sauce or honey to cut through the flavor.

8. What’s the ideal serving size for me, and how often should I take it?

There is no easy answer to this. Our starting recommended serving size is 15 drops but we generally recommend experimenting to see what feels best to you. Some prefer 5 drops, some prefer over 50 drops per day.

9. What is the safety of your hemp extracts? Are there negative side effects?

Hemp is considered by many to be generally safe. We’ve never seen or heard of any significant or negative CBD Oil Extractside effects in our years in the industry. That said, we can’t rule them out. Please consult with your physician before using any dietary supplement including Hemp extract supplements.

10. Which of your CBD and hemp products should I get?

As a company who sells various dietary and food supplements, we can’t suggest any of our products for the prevention, treatment or cure of any disease or ailment.

When considering our different dietary hemp products, know that they all come in two strengths. Our Original Hemp blends (Classic Hemp Blend, Hemp Complete, Brainpower oil, & Signature Blend) all have 250+mg of cannabinoids per fluid ounce, and our concentrated blends have 1,500+mg per fluid ounce, six times the potency of our traditional oils. We’ve found that sometimes less is more, but nevertheless, some people like to take very large serving sizes of our hemp extracts.

The main difference between the four Original Blends is the additional herbal ingredients besides hemp. We suggest you research the separate components of each blend to determine which product may be most appealing to add to your dietary regimen. If you know it’s solely the hemp extract that you are looking for, with no additional ingredients, then Classic Hemp Blend or Classic Hemp 6x is what you’re looking for.

For dabbing and vaporizing or for research you can try our CBD Isolate.

THOSE WHO SUSPECT THEY MAY HAVE A DISEASE OR ARE SEEKING HELP FOR A DISEASE SHOULD CONSULT A QUALIFIED MEDICAL PROFESSIONAL.

11. Why do people use Hemp Extracts and CBD? What are the benefits and uses of CBD?

In accordance with federal regulations we cannot make health claims regarding our dietary supplement products. We can only recommend our products for general wellness.

12. Is a standard hemp seed oil the same as a high-CBD hemp extract?

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Absolutely not. Standard hemp oil, which can be found very cheaply at a grocery store, is a much different product than our CO2 hemp extracts (not from seed). Standard hemp oil is produced by cold pressing the seeds, whereas our hemp extract is a supercritical CO2 extraction of the hemp plant itself, not the seeds. Hemp seed oil is considered to be a great nutritive food, but it doesn’t have the naturally occurring terpenes, cannabinoids and other components that our extracts do have.

13. Do I need to move to Colorado to get your Hemp Extracts and CBD? Where do you ship?

No. We actually source our hemp from Kentucky, as it’s legal to ship across state lines. Many people are under the impression that the only way to acquire hemp extracts and CBD for themselves or a loved one is to move to Colorado or another cannabis-friendly state. Many major news outlets are misinformed and are unfortunately spreading the idea that you can only get CBD oil in the states where medical marijuana has been legalized. This is simply not the case though. Because our extracts comes from hemp instead of marijuana, we can and do ship to all fifty states, and no medical marijuana card is needed. There are some exceptions, like with Indiana, Missouri and South Dakota we can’t sell our concentrated products due to state legislation.

We also ship to Japan, Australia, the EU, Switzerland, and Brazil. For all EU orders contact our exclusive distributor thereCannawell.

14. Is your Hemp Extract Oil similar to Rick Simpson Hemp Oil?

Not quite. Ours are from hemp and RSHO is usually using marijuana, a different form of cannabis than industrial hemp. Our industrial hemp extracts are more standardized and will usually have a much higher content of non-psychoactive cannabinoids like CBD than one produced through the Rick Simpson method. And oils produced through his method will usually have a much higher THC content, as it’s typically marijuana that is used for RSHO.†

Generally speaking, most marijuana producers and sellers (especially on the black market) don’t test for contaminants (metals, pesticides, bacteria, etc.). Rick Simpson Hemp Oil is actually more a method of extraction than it is a specific product. People use the Rick Simpson method with hundreds of different strains of marijuana, so the THC, CBD and other cannabinoid content of the final oil is always varying greatly, depending on the cannabis the consumers are acquiring. Usually what’s used for Rick Simpson oil is a strain with an inferior CBD content (and high THC), because that’s what the vast amount of marijuana is nowadays.

15. Where do you source your hemp and CBD from?

We have partners in Kentucky who grew a dedicated plot for us this year (2016) which is being used in our products now. mjna message boardWe also currently source from Europe but we’ll be changing that soon.

16. What kind of testing/analysis is performed on your products?

We have an industry leading quality control system, and we have third party laboratories analyze all of our hemp extracts and our final products for cannabinoid potency, heavy metals, bacterial and microbial life, mycotoxins (fungus), and pesticides.

17. What is CO2 extraction? What’s the difference between subcritical and supercritical CO2 extractions?

CO2 extraction is an extraction process that uses pressurized carbon dioxide to extract phyto-chemicals (such as CBD, CBG, or terpenes, flavonoids, etc.) from a plant. CO2 at certain temperatures and pressures acts like a solvent, without the dangers of actually being one. It is the most expensive extraction method, and is widely considered the most effective and safest plant extraction method in the world.

Many hemp and CBD companies boast about their supercritical CO2 extractions, but that’s actually only one (and perhaps an inferior) method of using a CO2 extraction machine. There are also subcritical CO2 extractions, and ‘mid-critical’, a general range between subcritical and supercritical. Subcritical (low temp, low pressure) CO2 extractions take more time and produce smaller yields than super-critical, but they retain the essential oils, terpenes, and other sensitive chemicals within the plant. Supercritical, on the other hand, is a high pressure and high temperature process that damages most terpenes and heat sensitive chemicals, but can extract much larger molecules such as lipids (omega 3 and 6), chlorophyll, and waxes. A truly full-spectrum CO2 extract includes first performing a subcritical extraction, separating the extracted oil, and then extracting the same plant material using supercritical pressure, and then homogenizing both oil extracts into one. In the essential oil industry, an extract made using this specific process is referred to as a CO2 Total.

18. What is the endocannabinoid system (ECS)?

“The endocannabinoid system (ECS) is a group of endogenous cannabinoid receptors located in the mammalian brain and throughout the central and peripheral nervous systems, consisting of neuromodulatory lipids and their receptors.” Wikipedia

There are two main types of receptors in the ECS, CB1 and CB2. CB1 receptors are primarily located in the central nervous system and brains of mammals, and CB2 are generally found in the peripheral nervous system. There are two main cannabinoids mammals produce- 2AG and Anandamide (named after the Sanskrit term “ananda” which translates to “peace”).

For hundreds of millions of years every vertebrate on Earth has been equipped with this ECS, a crucial system in the body, and it has been known about in the scientific and medical communities since the 1980’s. However, it’s still not taught about in most medical schools.

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